Public Engagement
Everything we do as a network is to benefit people in Canada through data use that leads to better health outcomes, greater health equity and more robust health, health care and social systems. The public has an essential role in informing the work we do, which is why a key strategic goal for HDRN Canada is to increase community and public influence on data systems. To support this commitment, we established the Public Engagement Working Group. Made up of staff and researchers from Member Organizations, the group collaborates with the Public Advisory Council, guided by its Public Engagement Plan to ensure the meaningful engagement of the public in HDRN Canada’s overall work and goals. Read the Public Engagement Working Group’s Terms of Reference for more information.
Health Data for All of Us
Each year, HDRN Canada hosts an annual hybrid in-person and online public forum to support our strategic goal of ensuring “purposeful and ongoing public and community involvement” in our collective work of facilitating multi-regional data access to improve health and health equity across the country. Researchers, students, policymakers and members of the public are invited to discuss and explore emergent and burning issues around the use, access and sharing of health data in Canada with leading thinkers and advocates in these areas.
Social Licence for Uses & Users of Health Data
Building on a decade of research into publicly supported uses of health data, this report adds the voices of public and patient advisors to the discussion about what uses and users of health data have “social licence.”